Tuesday, June 7, 2016Join in the healthcare conversation on SIRIUSXM Channel 111 - the Wharton business channel! A panel of experts will discuss orphan diseases -- conditions that affect fewer than 200,000 people nationwide.
Our next radio session, The Business of Orphan Drugs, will be Tuesday, June 7th from 12:00pm to 1:00pm EDT.
Orphan diseases are conditions that affects fewer than 200,000 people nationwide. This includes diseases as familiar as cystic fibrosis, Lou Gehrig's disease, and Tourette's syndrome, and as unfamiliar as Hamburger disease, Job syndrome, or Jumping Frenchmen of Maine. A panel of experts will discuss why these rare conditions are receiving increasing attention from the government, patient groups, and the pharmaceutical industry-not just because treatments are more readily available, but because they are treatments that make money for their investors.
Click here to register. Open only to current dues-paying members of WHCMAA. Available to 50 participants.
The user name and password for access to this session will be emailed to all participants the morning of Tuesday, June 7th.
Panelists:
- David Fajgenbaum, MD, MBA, MSc, Assistant Professor of Medicine in the Division of Translational Medicine & Human Genetics at the University of Pennsylvania, Associate Director of the Penn Orphan Disease Center, and the co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN), a global network accelerating research and treatment discovery for Castleman disease (CD).
- Michael Thomas, Principal at ZS Associates, a global sales and marketing firm
These sessions are free of charge to WHCMAA dues paying members and will permit a listener to listen in through their computer for these nationally broadcast one hour time slots. It will also provide listeners to call in during these sessions to provide their perspectives. These sessions will also be replayed 3 more times during the week on SIRIUS Channel 111. It is a great way to join in the conversation!
Replay schedule:
Friday, June 10th at 9:00 am EDT
Saturday, June 11th at 4:00 pm EDT
Sunday, June 12th at 9:00 pm EDT
Note: If we become oversubscribed to this offer, our goal will be to extend the one hour radio segment to 2 hours (to ensure your voice is heard). Lastly, if you have an idea for a panel discussion or would like to be a panelist for a session, please email Jeff Voigt at [email protected]. Again, this is open only to dues paying members.
Additional Sessions:
Please visit our Events page for a listing of additional sessions: http://www.whartonhealthcare.org/events.html.
Replay schedule:
Friday, June 10th at 9:00 am EDT
Saturday, June 11th at 4:00 pm EDT
Sunday, June 12th at 9:00 pm EDT
Note: If we become oversubscribed to this offer, our goal will be to extend the one hour radio segment to 2 hours (to ensure your voice is heard). Lastly, if you have an idea for a panel discussion or would like to be a panelist for a session, please email Jeff Voigt at [email protected]. Again, this is open only to dues paying members.
Additional Sessions:
Please visit our Events page for a listing of additional sessions: http://www.whartonhealthcare.org/events.html.